MGUS, SMM, and MM Patient Experience With Coronavirus 19 (COVID-19) Survey
Purpose
The purpose of this study is to examine how patients with multiple myeloma (MM) have been impacted by the severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) pandemic. The study will use a questionnaire to further understand how patients are being affected and gather information in order to track the long-term effects of the coronavirus. The scope of the questionnaire will include, COVID-19 diagnosis and treatment, changes in myeloma treatment and care, clinical trial familiarity, health and fitness, and quality of life. This questionnaire is a follow-on to the "MM and COVID-19" questionnaire.
Conditions
- Multiple Myeloma
- Smoldering Multiple Myeloma
- Monoclonal Gammopathy of Undetermined Significance
- Coronavirus
Eligibility
- Eligible Ages
- Over 18 Years
- Eligible Genders
- All
- Accepts Healthy Volunteers
- No
Criteria
Inclusion Criteria:
- Adult patients (greater than 18 years) diagnosed with MGUS, smoldering myeloma, and
multiple myeloma.
- Access to a computer or electronic device with internet access, or phone
- Willing to create a patient profile on the HealthTree Cure Hub For Multiple Myeloma
- Willing to give electronically-signed consent
- Ability to read questions in English
Study Design
- Phase
- Study Type
- Observational
- Observational Model
- Cohort
- Time Perspective
- Prospective
Arm Groups
| Arm | Description | Assigned Intervention |
|---|---|---|
| MGUS, SMM, MM Patients or their Caregivers | Eligible participants will be asked to create a free patient profile on the HealthTree Cure Hub (www.healthtree.org) or use their existing patient profile. The creation of a HealthTree Cure Hub patient profile will serve as a screen for eligibility. Patients will complete a one-time questionnaire found on the HealthTree Cure Hub. Telephone assistance can be provided as needed. The questionnaire will take 20-30 minutes to complete. |
|
Recruiting Locations
Lehi, Utah 84043
More Details
- NCT ID
- NCT04727294
- Status
- Unknown status
- Sponsor
- HealthTree Foundation